Go through these in order and stop at the first one that applies. If you are reading this for someone else, answer for them.
Seek emergency care for severe trouble breathing, blue or gray lips or tongue, collapse, unresponsiveness, chest pain with fainting, or a sustained very fast heartbeat accompanied by weakness or breathing difficulty.
Follow any emergency plan provided by the congenital heart team.
Contact the care team promptly for new or worsening shortness of breath, reduced feeding, poor weight gain, increasing fatigue, frequent palpitations, dizziness, swelling, fever after a recent heart procedure, or signs of a respiratory infection that are affecting breathing.
Lifelong follow-up with a congenital cardiology team is important, even when a person feels well.
Adults should ideally receive care from a cardiologist trained in adult congenital heart disease.
Routine visits may include an examination, echocardiogram, electrocardiogram, heart rhythm monitoring, exercise testing, or cardiac MRI.
The schedule depends on the repair, valve function, right ventricular size, airway symptoms, and previous test results.
The cardiology team can provide advice based on heart function, rhythm history, oxygen level, and planned sports.
The article also says
Regular dental care and daily brushing and flossing support heart health.
Physical activity is often encouraged, but safe intensity varies.
Every sign above is quoted from the sofidex article on Absent pulmonary valve. If you are not sure, err upward — it is always reasonable to be checked.