sofidexFor patientsAre you a clinician? Clinical site
Ask Sofi
Listen
Patient SupportEmergencies & Reporting
Log inSign up

Warning-sign checks

Adult still disease: when to get help

Go through these in order and stop at the first one that applies. If you are reading this for someone else, answer for them.

  1. 1

    Is any of this happening now?

    Call 911
    Other emergency signs, for anyone
    • Someone who is struggling to breathe, gasping, choking, or cannot get words out
    • Someone who has chest pain, tightness or pressure lasting more than a few minutes
    • Someone who has sudden weakness or drooping on one side of the face or body, slurred speech, or sudden confusion
    • Someone who is unconscious, or cannot be woken
    • Someone who is bleeding heavily and it will not stop with firm pressure
    • Someone who has had a seizure that will not stop, or does not wake up afterwards
    • Someone who has lips or skin that look pale, blue, grey or blotchy
    • Someone who you believe has taken an overdose or swallowed something poisonous
  2. 2

    Is any of this happening?

    Be seen today

    Those receiving biologic medicines or other immune-suppressing treatments should report possible infections promptly and discuss vaccines before receiving them.

  3. 3

    Does any of this apply?

    Book an appointment

    Routine follow-up is important even when symptoms improve.

    Adult Still disease can relapse, and treatment may need to be adjusted gradually.

    Contact the treating clinician between routine visits if fever or rash returns, joint symptoms steadily worsen, new swelling develops, or treatment causes concerning effects.

    Do not stop corticosteroids suddenly unless a clinician directs you to do so.

    And for anyone, someone who:

    • has a symptom that has lasted more than a couple of weeks without improving

The article also says

Appointments may include a review of fever patterns, rash, joint swelling, morning stiffness, energy, daily function, and possible medicine side effects.

Blood tests may monitor inflammation, blood cell counts, liver function, kidney function, and ferritin.

The tests needed and their timing depend on the disease and treatment.

People taking corticosteroids may also need attention to bone health, blood pressure, blood sugar, eye health, and infection prevention.

Pregnancy planning should be discussed in advance because active inflammation and some medicines can affect pregnancy decisions.

A rheumatologist and obstetric clinician can review treatment options before conception and during pregnancy.

Every sign above is quoted from the sofidex article on Adult still disease. If you are not sure, err upward — it is always reasonable to be checked.