Go through these in order and stop at the first one that applies. If you are reading this for someone else, answer for them.
Contact the care team promptly about new headaches, repeated vomiting, worsening snoring, breathing pauses, reduced hearing, eye irritation, changes in vision, loss of skills, or a clear change in behavior or school performance.
These symptoms do not always signal a serious problem, but they should not wait for a distant routine appointment.
Apert syndrome requires long-term follow-up because medical needs change with growth.
Routine visits with a craniofacial team allow specialists to coordinate testing and avoid unnecessary duplication.
Follow-up commonly includes checks of skull growth, head shape, vision, hearing, breathing, sleep, dental development, hand function, speech, and learning.
Clinicians may examine the optic nerves for signs of pressure even when a child does not report headaches.
Sleep testing may be recommended when there is persistent snoring, pauses in breathing, restless sleep, or daytime symptoms.
The article also says
Developmental progress should be reviewed during early childhood and school years.
Support can be adjusted when new academic, communication, movement, or social needs appear.
Transition planning can help adolescents move from pediatric to adult medical, dental, and mental health services.
Every sign above is quoted from the sofidex article on Apert syndrome. If you are not sure, err upward — it is always reasonable to be checked.