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Warning-sign checks

Arnold-chiari malformation: when to get help

Go through these in order and stop at the first one that applies. If you are reading this for someone else, answer for them.

  1. 1

    Is any of this happening now?

    Call 911

    Seek emergency care for severe breathing difficulty, ongoing choking, sudden major weakness, loss of consciousness, or sudden neurological symptoms such as facial drooping or difficulty speaking.

    Other emergency signs, for anyone
    • Someone who is struggling to breathe, gasping, choking, or cannot get words out
    • Someone who has chest pain, tightness or pressure lasting more than a few minutes
    • Someone who has sudden weakness or drooping on one side of the face or body, slurred speech, or sudden confusion
    • Someone who is unconscious, or cannot be woken
    • Someone who is bleeding heavily and it will not stop with firm pressure
    • Someone who has had a seizure that will not stop, or does not wake up afterwards
    • Someone who has lips or skin that look pale, blue, grey or blotchy
    • Someone who you believe has taken an overdose or swallowed something poisonous
  2. 2

    Is any of this happening?

    Be seen today

    Contact the treating team promptly for worsening weakness, repeated falls, increasing numbness, new swallowing problems, drainage or swelling at a surgical incision, fever after surgery, or a major change in bladder or bowel control.

  3. 3

    Does any of this apply?

    Book an appointment

    Follow-up is based on symptoms, age, examination findings, and whether a syrinx or another associated condition is present.

    Care may involve primary care, neurology, neurosurgery, rehabilitation, sleep medicine, or other specialists.

    At routine visits, discuss changes in headaches, balance, swallowing, sleep, strength, sensation, hand function, and bladder or bowel control.

    Children may also need monitoring for scoliosis, growth, school difficulties, and changes in motor development.

    Routine headaches or stable long-term symptoms can usually be discussed at a scheduled visit unless their pattern changes significantly.

The article also says

After surgery, follow the care team’s instructions about wound care, activity, return to work or school, and imaging.

Recovery time varies.

Improvement may be gradual, and some symptoms may remain even when cerebrospinal fluid flow has improved.

Every sign above is quoted from the sofidex article on Arnold-chiari malformation. If you are not sure, err upward — it is always reasonable to be checked.