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Warning-sign checks

Autism spectrum disorder - childhood disintegrative disorder: when to get help

Go through these in order and stop at the first one that applies. If you are reading this for someone else, answer for them.

  1. 1

    Is any of this happening now?

    Call 911

    Seek emergency care for a first seizure, a seizure lasting several minutes, repeated seizures without recovery, trouble breathing, severe injury, sudden one-sided weakness, or a child who is difficult to wake.

    Other emergency signs, for anyone
    • Someone who is struggling to breathe, gasping, choking, or cannot get words out
    • Someone who has chest pain, tightness or pressure lasting more than a few minutes
    • Someone who has sudden weakness or drooping on one side of the face or body, slurred speech, or sudden confusion
    • Someone who is unconscious, or cannot be woken
    • Someone who is bleeding heavily and it will not stop with firm pressure
    • Someone who has had a seizure that will not stop, or does not wake up afterwards
    • Someone who has lips or skin that look pale, blue, grey or blotchy
    • Someone who you believe has taken an overdose or swallowed something poisonous
  2. 2

    Is any of this happening?

    Be seen today

    Contact the child's clinician promptly if there is a clear new loss of language, movement, awareness, bladder or bowel control, or self-care skills.

    Prompt assessment is also appropriate for staring spells, repeated unusual movements, major changes in walking, persistent headaches, new weakness, or a rapid change in behavior.

    Fever with marked confusion, neck stiffness, or rapidly worsening neurological symptoms also requires urgent assessment.

  3. 3

    Does any of this apply?

    Book an appointment

    Routine follow-up should review development, communication, learning, behavior, sleep, nutrition, bowel habits, hearing, and school progress.

    The care plan should change as the child grows.

    Transitions into school, adolescence, and adult services often require early planning.

    Routine developmental concerns without sudden deterioration can usually be discussed with the child's primary care clinician.

    Families do not need to wait for a completed autism evaluation before requesting early intervention or a school-based assessment.

Every sign above is quoted from the sofidex article on Autism spectrum disorder - childhood disintegrative disorder. If you are not sure, err upward — it is always reasonable to be checked.