sofidexFor patientsAre you a clinician? Clinical site

Warning-sign checks

Cleft lip: when to get help

Go through these in order and stop at the first one that applies. If you are reading this for someone else, answer for them.

  1. 1

    Is any of this happening now?

    Call 911

    Seek emergency care for trouble breathing, blue or gray coloring, difficulty waking the child, signs of severe dehydration, or heavy bleeding.

    Other emergency signs, for anyone
    • Someone who is struggling to breathe, gasping, choking, or cannot get words out
    • Someone who has chest pain, tightness or pressure lasting more than a few minutes
    • Someone who has sudden weakness or drooping on one side of the face or body, slurred speech, or sudden confusion
    • Someone who is unconscious, or cannot be woken
    • Someone who is bleeding heavily and it will not stop with firm pressure
    • Someone who has had a seizure that will not stop, or does not wake up afterwards
    • Someone who has lips or skin that look pale, blue, grey or blotchy
    • Someone who you believe has taken an overdose or swallowed something poisonous
  2. 2

    Is any of this happening?

    Be seen today

    Contact the child's care team promptly if the baby feeds poorly, has fewer wet diapers, repeatedly coughs or chokes during feeds, or is not gaining weight as expected.

    After surgery, call the team for fever, increasing redness or swelling, pus-like drainage, worsening pain, bleeding that does not stop with the instructed measures, or an incision that begins to open.

  3. 3

    Does any of this apply?

    Book an appointment

    Routine follow-up may include:

    • Monitoring feeding and growth
    • Checking healing and scar development after surgery
    • Evaluating the lip and nose as the face grows
    • Dental care beginning in early childhood
    • Orthodontic assessment when the teeth and jaws develop
    • Hearing and speech checks when cleft palate is also present
    • Emotional and social support for the child and family

The article also says

Cleft care continues as the face, teeth, and speech develop.

Even after a successful lip repair, periodic team visits can identify needs that are not obvious during infancy.

Families may benefit from keeping copies of operative reports, hearing results, dental records, and the cleft team's long-term care plan.

As the child becomes older, involving them in age-appropriate discussions can help them understand their care and speak up about their goals.

Every sign above is quoted from the sofidex article on Cleft lip. If you are not sure, err upward — it is always reasonable to be checked.