Go through these in order and stop at the first one that applies. If you are reading this for someone else, answer for them.
1
Is any of this happening now?
Call 911
Other emergency signs, for anyone
Someone who is struggling to breathe, gasping, choking, or cannot get words out
Someone who has chest pain, tightness or pressure lasting more than a few minutes
Someone who has sudden weakness or drooping on one side of the face or body, slurred speech, or sudden confusion
Someone who is unconscious, or cannot be woken
Someone who is bleeding heavily and it will not stop with firm pressure
Someone who has had a seizure that will not stop, or does not wake up afterwards
Someone who has lips or skin that look pale, blue, grey or blotchy
Someone who you believe has taken an overdose or swallowed something poisonous
2
Does any of this apply?
Book an appointment
Follow-up needs change with age.
Children benefit from coordinated dental and orthodontic planning before extensive crowding or impaction makes treatment more difficult.
The schedule for examinations and X-rays should be set by the dental team.
Routine care may include:
Dental and orthodontic review
Monitoring of growth, posture, spine, hips, and walking
Hearing testing when age-appropriate or when concerns arise
Review of ear infections, sinus symptoms, snoring, and sleep quality
Assessment of pain, fractures, physical activity, and bone-health risks
Support for speech, school participation, and emotional well-being
Genetic counseling when family planning or testing is being considered
Adults should continue dental follow-up even after orthodontic treatment has ended.
New pain, changes in bite, loose teeth, hearing problems, or sleep-related breathing symptoms should be evaluated rather than assumed to be part of CCD.
The article also says
Keeping copies of genetic test results, dental images, and major treatment records can make it easier for new clinicians to understand prior care.
Every sign above is quoted from the sofidex article on Cleidocranial dysostosis. If you are not sure, err upward — it is always reasonable to be checked.