Congenital fibrinogen deficiency: when to get help
Go through these in order and stop at the first one that applies. If you are reading this for someone else, answer for them.
1
Is any of this happening now?
Call 911
Call emergency services for:
A significant head injury or sudden severe headache
Confusion, weakness, fainting, seizure, or difficulty speaking
Sudden shortness of breath, chest pain, or coughing blood
Severe abdominal pain, swelling, dizziness, or collapse
Heavy, uncontrolled bleeding
Bleeding during pregnancy with significant pain, weakness, or faintness
Other emergency signs, for anyone
Someone who is struggling to breathe, gasping, choking, or cannot get words out
Someone who has chest pain, tightness or pressure lasting more than a few minutes
Someone who has sudden weakness or drooping on one side of the face or body, slurred speech, or sudden confusion
Someone who is unconscious, or cannot be woken
Someone who is bleeding heavily and it will not stop with firm pressure
Someone who has had a seizure that will not stop, or does not wake up afterwards
Someone who has lips or skin that look pale, blue, grey or blotchy
Someone who you believe has taken an overdose or swallowed something poisonous
2
Is any of this happening?
Be seen today
Seek urgent medical assessment for bleeding that does not stop with your usual first-aid or treatment plan, a suspected deep muscle bleed, blood in vomit or stool, or new painful swelling in a leg.
Do not wait for visible bruising after a serious injury.
Internal bleeding may not be obvious at first.
3
Does any of this apply?
Book an appointment
Arrange routine contact with your hematology or primary care team if you have:
More frequent bruising, nosebleeds, or gum bleeding
Heavier or longer menstrual bleeding
New tiredness or other possible signs of anemia
Repeated pain or swelling in a joint
An upcoming operation, dental procedure, or invasive test
Plans for pregnancy or a confirmed pregnancy
Questions about medicines, exercise, work, or travel
Every sign above is quoted from the sofidex article on Congenital fibrinogen deficiency. If you are not sure, err upward — it is always reasonable to be checked.