Go through these in order and stop at the first one that applies. If you are reading this for someone else, answer for them.
1
Is any of this happening now?
Call 911
Get emergency medical help for:
New confusion or reduced alertness
Unusual or extreme sleepiness
Poor feeding in a baby
A high-pitched cry
New stiffness, floppiness, or arching
Slurred speech or unsteady movement
Seizures or loss of consciousness
These symptoms do not prove that bilirubin is affecting the brain, but they need immediate assessment.
Bring information about the diagnosis and usual treatment if it is readily available, without delaying emergency care.
Other emergency signs, for anyone
Someone who is struggling to breathe, gasping, choking, or cannot get words out
Someone who has chest pain, tightness or pressure lasting more than a few minutes
Someone who has sudden weakness or drooping on one side of the face or body, slurred speech, or sudden confusion
Someone who is unconscious, or cannot be woken
Someone who is bleeding heavily and it will not stop with firm pressure
Someone who has had a seizure that will not stop, or does not wake up afterwards
Someone who has lips or skin that look pale, blue, grey or blotchy
Someone who you believe has taken an overdose or swallowed something poisonous
2
Is any of this happening?
Be seen today
Seek prompt medical advice during an illness if the affected person cannot drink, is vomiting repeatedly, has signs of dehydration, or cannot continue usual treatment.
3
Does any of this apply?
Book an appointment
Arrange routine medical advice if jaundice becomes more noticeable, treatment is becoming difficult to maintain, or side effects are interfering with daily life.
Contact the specialist team before planned surgery, pregnancy, prolonged fasting, or starting a new medicine or supplement.
Every sign above is quoted from the sofidex article on Crigler-najjar syndrome. If you are not sure, err upward — it is always reasonable to be checked.