Go through these in order and stop at the first one that applies. If you are reading this for someone else, answer for them.
1
Is any of this happening now?
Call 911
Seek emergency medical care for signs that a stone may be blocking an infected urinary tract:
Fever or chills with pain in the side or back
Feeling severely unwell, confused, faint, or unusually drowsy
Very little or no urine, especially with worsening pain
Stone symptoms in someone with one functioning kidney
Other emergency signs, for anyone
Someone who is struggling to breathe, gasping, choking, or cannot get words out
Someone who has chest pain, tightness or pressure lasting more than a few minutes
Someone who has sudden weakness or drooping on one side of the face or body, slurred speech, or sudden confusion
Someone who is unconscious, or cannot be woken
Someone who is bleeding heavily and it will not stop with firm pressure
Someone who has had a seizure that will not stop, or does not wake up afterwards
Someone who has lips or skin that look pale, blue, grey or blotchy
Someone who you believe has taken an overdose or swallowed something poisonous
2
Is any of this happening?
Be seen today
An infected, obstructed kidney may require urgent drainage as well as antibiotics like amoxicillin or doxycycline .
Seek prompt medical advice for pain that cannot be controlled, repeated vomiting, difficulty keeping fluids down, visible blood in the urine, or new urinary symptoms.
Children, pregnant people, and people with reduced kidney function may need earlier assessment.
If you take a cystine-binding medicine, promptly report new swelling, rash, mouth ulcers, unusual bruising, or marked tiredness.
3
Does any of this apply?
Book an appointment
Attend routine follow-up to review urine results, imaging, treatment side effects, and difficulty meeting fluid or dietary goals.
Every sign above is quoted from the sofidex article on Cystinuria. If you are not sure, err upward — it is always reasonable to be checked.