Go through these in order and stop at the first one that applies. If you are reading this for someone else, answer for them.
1
Is any of this happening now?
Call 911
Seek emergency medical help for:
Severe or sudden difficulty breathing
Fainting, especially during exercise or palpitations
A fast or irregular heartbeat that does not settle
New or rapidly worsening blue or grey lips or skin
Chest pain with breathlessness, sweating, or faintness
Sudden facial drooping, arm weakness, speech difficulty, or confusion
Other emergency signs, for anyone
Someone who is struggling to breathe, gasping, choking, or cannot get words out
Someone who has chest pain, tightness or pressure lasting more than a few minutes
Someone who has sudden weakness or drooping on one side of the face or body, slurred speech, or sudden confusion
Someone who is unconscious, or cannot be woken
Someone who is bleeding heavily and it will not stop with firm pressure
Someone who has had a seizure that will not stop, or does not wake up afterwards
Someone who has lips or skin that look pale, blue, grey or blotchy
Someone who you believe has taken an overdose or swallowed something poisonous
2
Is any of this happening?
Be seen today
Contact your congenital heart team promptly for faint feelings, more frequent palpitations, worsening breathlessness, or a noticeable change in skin or lip colour.
A baby needs urgent assessment for blue or grey colouring, struggling to breathe, unusual sleepiness, poor feeding, or sweating and tiring during feeds.
3
Does any of this apply?
Book an appointment
Arrange follow-up if you notice a gradual reduction in exercise ability, increasing tiredness, new ankle or abdominal swelling, or occasional palpitations.
These symptoms do not always mean the condition is worsening, but they should be assessed.
Every sign above is quoted from the sofidex article on Ebstein anomaly. If you are not sure, err upward — it is always reasonable to be checked.