Ectodermosis erosiva pluriorificialis: when to get help
Go through these in order and stop at the first one that applies. If you are reading this for someone else, answer for them.
1
Is any of this happening now?
Call 911
Call emergency services or go to an emergency department for skin peeling, breathing difficulty, faintness, confusion, severe weakness, or inability to swallow fluids.
These can indicate extensive disease or a serious complication.
Other emergency signs, for anyone
Someone who is struggling to breathe, gasping, choking, or cannot get words out
Someone who has chest pain, tightness or pressure lasting more than a few minutes
Someone who has sudden weakness or drooping on one side of the face or body, slurred speech, or sudden confusion
Someone who is unconscious, or cannot be woken
Someone who is bleeding heavily and it will not stop with firm pressure
Someone who has had a seizure that will not stop, or does not wake up afterwards
Someone who has lips or skin that look pale, blue, grey or blotchy
Someone who you believe has taken an overdose or swallowed something poisonous
2
Is any of this happening?
Be seen today
Seek urgent same-day assessment for:
New painful blisters or raw areas affecting the mouth, eyes, or genitals
A spreading rash after starting a medicine
Eye pain, light sensitivity, discharge, or blurred vision
Mouth pain that makes drinking difficult
Fever with tender or blistering skin
Reduced urination or other signs of dehydration
3
Does any of this apply?
Book an appointment
Arrange a routine appointment if affected areas remain dry, painful, or sensitive after the main illness settles.
Ongoing eye irritation, urinary discomfort, genital pain, breathing symptoms, or emotional distress also need follow-up.
Every sign above is quoted from the sofidex article on Ectodermosis erosiva pluriorificialis. If you are not sure, err upward — it is always reasonable to be checked.