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Warning-sign checks

Encephalofacial angiomatosis: when to get help

Go through these in order and stop at the first one that applies. If you are reading this for someone else, answer for them.

  1. 1

    Is any of this happening now?

    Call 911

    Call emergency services for:

    • A first seizure, especially without an established seizure plan
    • A seizure lasting longer than five minutes, or longer than the person’s emergency plan allows
    • Repeated seizures without waking or returning to normal between them
    • Breathing difficulty, serious injury, or persistent unresponsiveness after a seizure
    • Sudden weakness, facial drooping, speech trouble, severe confusion, or loss of vision
    • Sudden severe eye pain, redness, vomiting, halos around lights, or rapid vision loss
    Other emergency signs, for anyone
    • Someone who is struggling to breathe, gasping, choking, or cannot get words out
    • Someone who has chest pain, tightness or pressure lasting more than a few minutes
    • Someone who has sudden weakness or drooping on one side of the face or body, slurred speech, or sudden confusion
    • Someone who is unconscious, or cannot be woken
    • Someone who is bleeding heavily and it will not stop with firm pressure
    • Someone who has had a seizure that will not stop, or does not wake up afterwards
    • Someone who has lips or skin that look pale, blue, grey or blotchy
    • Someone who you believe has taken an overdose or swallowed something poisonous
  2. 2

    Is any of this happening?

    Be seen today

    Sudden neurological symptoms may resemble previous stroke-like episodes, but still need urgent assessment because stroke or another serious problem cannot be excluded at home.

    Arrange prompt medical review for new seizures, a clear increase in seizure frequency, new weakness, loss of developmental skills, persistent headaches, or vision changes.

    An enlarging, cloudy, or persistently watery eye in a baby also needs prompt eye assessment.

  3. 3

    Does any of this apply?

    Book an appointment

    Routine follow-up includes scheduled eye-pressure checks, seizure reviews, developmental or educational assessments, and monitoring of the birthmark.

    These visits remain important even when symptoms are stable.

Every sign above is quoted from the sofidex article on Encephalofacial angiomatosis. If you are not sure, err upward — it is always reasonable to be checked.