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Warning-sign checks

Familial emphysema: when to get help

Go through these in order and stop at the first one that applies. If you are reading this for someone else, answer for them.

  1. 1

    Is any of this happening now?

    Call 911

    Seek emergency help for:

    • Severe breathlessness at rest or difficulty speaking
    • Blue or grey lips, skin, or fingertips
    • New confusion, extreme drowsiness, or fainting
    • Sudden chest pain, especially with abrupt breathlessness
    • Coughing up more than a small streak of blood

    Do not drive yourself for emergency care if you are severely short of breath or confused.

    Other emergency signs, for anyone
    • Someone who is struggling to breathe, gasping, choking, or cannot get words out
    • Someone who has chest pain, tightness or pressure lasting more than a few minutes
    • Someone who has sudden weakness or drooping on one side of the face or body, slurred speech, or sudden confusion
    • Someone who is unconscious, or cannot be woken
    • Someone who is bleeding heavily and it will not stop with firm pressure
    • Someone who has had a seizure that will not stop, or does not wake up afterwards
    • Someone who has lips or skin that look pale, blue, grey or blotchy
    • Someone who you believe has taken an overdose or swallowed something poisonous
  2. 2

    Is any of this happening?

    Be seen today

    Contact your usual healthcare service promptly if your breathing becomes worse than normal, your mucus increases or changes colour, you develop a fever, or your usual treatment is not helping.

    These may indicate a flare-up or infection.

  3. 3

    Does any of this apply?

    Book an appointment

    Arrange a routine appointment if you have persistent breathlessness, cough, wheezing, or reduced exercise tolerance.

    Assessment is also reasonable if emphysema, early-onset COPD, AAT deficiency, or unexplained liver problems occur in your biological family.

Every sign above is quoted from the sofidex article on Familial emphysema. If you are not sure, err upward — it is always reasonable to be checked.