sofidexFor patientsAre you a clinician? Clinical site
Ask Sofi
Listen
Patient SupportEmergencies & Reporting
Log inSign up

Warning-sign checks

Familial lichen amyloidosis: when to get help

Go through these in order and stop at the first one that applies. If you are reading this for someone else, answer for them.

  1. 1

    Is any of this happening now?

    Call 911

    Call emergency services for trouble breathing, swelling of the face or tongue, faintness, or a widespread blistering or peeling rash after using a medicine.

    These may be signs of a serious treatment reaction rather than familial lichen amyloidosis itself.

    Other emergency signs, for anyone
    • Someone who is struggling to breathe, gasping, choking, or cannot get words out
    • Someone who has chest pain, tightness or pressure lasting more than a few minutes
    • Someone who has sudden weakness or drooping on one side of the face or body, slurred speech, or sudden confusion
    • Someone who is unconscious, or cannot be woken
    • Someone who is bleeding heavily and it will not stop with firm pressure
    • Someone who has had a seizure that will not stop, or does not wake up afterwards
    • Someone who has lips or skin that look pale, blue, grey or blotchy
    • Someone who you believe has taken an overdose or swallowed something poisonous
  2. 2

    Is any of this happening?

    Be seen today

    Seek prompt medical care for rapidly spreading redness, increasing warmth or pain, pus, red streaks, or fever.

    These may indicate an infection where scratching has broken the skin.

  3. 3

    Does any of this apply?

    Book an appointment

    Arrange a routine medical appointment for persistent itchy bumps, especially if close relatives have similar skin changes.

    Seek assessment if a known patch spreads, itching regularly disrupts sleep, or treatment no longer controls symptoms.

The article also says

Contact the clinician managing your treatment if you notice skin thinning, easy bruising, severe irritation, or other possible side effects.

New or changing lesions may need examination or another biopsy.

Every sign above is quoted from the sofidex article on Familial lichen amyloidosis. If you are not sure, err upward — it is always reasonable to be checked.