sofidexFor patientsAre you a clinician? Clinical site

Warning-sign checks

Fibrous dysplasia: when to get help

Go through these in order and stop at the first one that applies. If you are reading this for someone else, answer for them.

  1. 1

    Is any of this happening now?

    Call 911

    Call emergency services for a serious injury, an open fracture, a limb that becomes pale or cold, sudden loss of vision, or new weakness with loss of bladder or bowel control.

    Other emergency signs, for anyone
    • Someone who is struggling to breathe, gasping, choking, or cannot get words out
    • Someone who has chest pain, tightness or pressure lasting more than a few minutes
    • Someone who has sudden weakness or drooping on one side of the face or body, slurred speech, or sudden confusion
    • Someone who is unconscious, or cannot be woken
    • Someone who is bleeding heavily and it will not stop with firm pressure
    • Someone who has had a seizure that will not stop, or does not wake up afterwards
    • Someone who has lips or skin that look pale, blue, grey or blotchy
    • Someone who you believe has taken an overdose or swallowed something poisonous
  2. 2

    Is any of this happening?

    Be seen today

    Seek urgent medical assessment for:

    • Sudden severe bone pain, swelling, or inability to bear weight
    • A visible new deformity after a fall or injury
    • New double vision, reduced vision, or rapidly changing eyesight
    • New weakness, numbness, loss of balance, or severe nerve-like pain
    • A rapidly enlarging or unusually painful area of bone
  3. 3

    Does any of this apply?

    Book an appointment

    Arrange a routine appointment if you develop ongoing bone pain, a new lump or change in bone shape, a limp, repeated fractures, hearing changes, or dental problems near an affected facial bone.

    If you already have fibrous dysplasia, report pain that is becoming more frequent or limiting normal activity.

    Routine follow-up is appropriate for stable symptoms and planned monitoring.

    Sudden fracture signs, major neurological symptoms, or abrupt visual loss are not routine concerns.

Every sign above is quoted from the sofidex article on Fibrous dysplasia. If you are not sure, err upward — it is always reasonable to be checked.