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Warning-sign checks

Hole in the heart: when to get help

Go through these in order and stop at the first one that applies. If you are reading this for someone else, answer for them.

  1. 1

    Is any of this happening now?

    Call 911

    Call emergency services for severe breathing difficulty, collapse, chest pain with sweating or breathlessness, signs of stroke, or blue-grey lips, tongue or skin.

    Stroke signs can include sudden facial drooping, arm weakness, speech difficulty, vision loss or loss of balance.

    And for anyone, someone who:

    • has chest pain, tightness or pressure lasting more than a few minutes
    Other emergency signs, for anyone
    • Someone who is struggling to breathe, gasping, choking, or cannot get words out
    • Someone who has sudden weakness or drooping on one side of the face or body, slurred speech, or sudden confusion
    • Someone who is unconscious, or cannot be woken
    • Someone who is bleeding heavily and it will not stop with firm pressure
    • Someone who has had a seizure that will not stop, or does not wake up afterwards
    • Someone who has lips or skin that look pale, blue, grey or blotchy
    • Someone who you believe has taken an overdose or swallowed something poisonous
  2. 2

    Is any of this happening?

    Be seen today

    If you already have a diagnosed defect, contact your heart team sooner than planned if symptoms are new or becoming more noticeable.

    Seek urgent medical care for:

    • Sudden or marked worsening of breathing
    • New fainting or severe weakness
    • A sustained racing or irregular heartbeat with dizziness
    • New swelling with breathlessness
    • Fever with unexplained illness in someone at increased endocarditis risk

    And for anyone, someone who:

    • is getting rapidly more short of breath, or has gained several pounds in a few days with swelling
  3. 3

    Does any of this apply?

    Book an appointment

    Arrange a routine medical appointment if you or your child has ongoing breathlessness, tiring during feeds or activity, poor weight gain, repeated faint feelings, swelling, or episodes of a fast or irregular heartbeat.

    These symptoms need assessment but do not necessarily mean there is a heart defect.

    Routine follow-up remains important even when there are no symptoms.

Every sign above is quoted from the sofidex article on Hole in the heart. If you are not sure, err upward — it is always reasonable to be checked.