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Warning-sign checks

Hypotonia-hypomentia-hypogonadism-obesity syndrome: when to get help

Go through these in order and stop at the first one that applies. If you are reading this for someone else, answer for them.

  1. 1

    Is any of this happening now?

    Call 911

    Get urgent or emergency help for:

    • Trouble breathing, blue or grey lips, or difficulty waking
    • Choking or suspected food inhalation
    • A swollen or firm abdomen
    • Severe or increasing abdominal pain
    • Vomiting, especially because vomiting is uncommon in this condition
    • Sudden loss of appetite with abdominal symptoms or marked lethargy
    • Collapse, seizure, or a serious injury
    • Thoughts or actions suggesting immediate risk of self-harm

    Tell emergency staff that the person has Prader-Willi syndrome, reduced pain sensitivity, and may not show typical signs of serious illness.

    Other emergency signs, for anyone
    • Someone who is struggling to breathe, gasping, choking, or cannot get words out
    • Someone who has chest pain, tightness or pressure lasting more than a few minutes
    • Someone who has sudden weakness or drooping on one side of the face or body, slurred speech, or sudden confusion
    • Someone who is unconscious, or cannot be woken
    • Someone who is bleeding heavily and it will not stop with firm pressure
    • Someone who has had a seizure that will not stop, or does not wake up afterwards
    • Someone who has lips or skin that look pale, blue, grey or blotchy
    • Someone who you believe has taken an overdose or swallowed something poisonous
  2. 2

    Is any of this happening?

    Be seen today

    Seek prompt medical advice for fever, reduced alertness, new weakness, persistent constipation, swelling, or a clear change from usual behaviour.

    Pain and fever may be less noticeable in Prader-Willi syndrome.

  3. 3

    Does any of this apply?

    Book an appointment

    Arrange routine medical follow-up for changes in weight, sleep, mobility, skin picking, menstrual patterns, puberty, behaviour, or ability to manage daily activities.

    New daytime sleepiness, loud snoring, pauses in breathing during sleep, or a major change in food seeking also deserves assessment.

Every sign above is quoted from the sofidex article on Hypotonia-hypomentia-hypogonadism-obesity syndrome. If you are not sure, err upward — it is always reasonable to be checked.