sofidexFor patientsAre you a clinician? Clinical site

Warning-sign checks

Ichthyosis: when to get help

Go through these in order and stop at the first one that applies. If you are reading this for someone else, answer for them.

  1. 1

    Is any of this happening now?

    Call 911

    Call emergency services if overheating causes confusion, fainting, a seizure, severe weakness, or loss of consciousness.

    Move to a cooler place and begin cooling while help is being arranged.

    Other emergency signs, for anyone
    • Someone who is struggling to breathe, gasping, choking, or cannot get words out
    • Someone who has chest pain, tightness or pressure lasting more than a few minutes
    • Someone who has sudden weakness or drooping on one side of the face or body, slurred speech, or sudden confusion
    • Someone who is unconscious, or cannot be woken
    • Someone who is bleeding heavily and it will not stop with firm pressure
    • Someone who has had a seizure that will not stop, or does not wake up afterwards
    • Someone who has lips or skin that look pale, blue, grey or blotchy
    • Someone who you believe has taken an overdose or swallowed something poisonous
  2. 2

    Is any of this happening?

    Be seen today

    Seek prompt medical advice if:

    • The skin becomes increasingly painful, warm, swollen, or produces pus
    • You develop fever with signs of a skin infection
    • Cracks are deep, bleeding, or stopping you from walking or using your hands
    • Scale is affecting hearing
    • Your eyelids do not close fully, or you develop eye pain or blurred vision
    • You repeatedly become dizzy, sick, or unusually tired in warm conditions

    A newborn with widespread tight, shiny, cracked, or peeling skin needs urgent hospital assessment.

    Babies with severe congenital ichthyosis can lose fluid and heat quickly and may need help with feeding, breathing, eye protection, and infection prevention.

  3. 3

    Does any of this apply?

    Book an appointment

    Arrange a routine appointment if you have persistent scaling that does not improve with ordinary moisturiser, especially if it started in adulthood.

    Follow-up is also appropriate if treatment is not controlling cracking, itching, pain, or sleep disruption.

Every sign above is quoted from the sofidex article on Ichthyosis. If you are not sure, err upward — it is always reasonable to be checked.