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Warning-sign checks

Indolent systemic mastocytosis: when to get help

Go through these in order and stop at the first one that applies. If you are reading this for someone else, answer for them.

  1. 1

    Is any of this happening now?

    Call 911

    Call emergency services if you develop signs of anaphylaxis, including:

    • Trouble breathing, wheezing, or throat or tongue swelling
    • Fainting, collapse, confusion, or severe weakness
    • A sudden combination of skin, breathing, digestive, or circulation symptoms

    If you have been prescribed an adrenaline autoinjector, use it immediately according to your emergency plan, then call emergency services.

    Symptoms can return after seeming to improve, so medical assessment is still needed.

    Routine follow-up is the right place to discuss ongoing flushing, itching, digestive symptoms, fatigue, medicine side effects, trigger patterns, bone-density results, and whether your emergency plan remains suitable.

    Other emergency signs, for anyone
    • Someone who is struggling to breathe, gasping, choking, or cannot get words out
    • Someone who has chest pain, tightness or pressure lasting more than a few minutes
    • Someone who has sudden weakness or drooping on one side of the face or body, slurred speech, or sudden confusion
    • Someone who is unconscious, or cannot be woken
    • Someone who is bleeding heavily and it will not stop with firm pressure
    • Someone who has had a seizure that will not stop, or does not wake up afterwards
    • Someone who has lips or skin that look pale, blue, grey or blotchy
    • Someone who you believe has taken an overdose or swallowed something poisonous
  2. 2

    Is any of this happening?

    Be seen today

    Seek prompt medical advice for a major change in your usual symptoms, repeated reactions needing adrenaline, severe or persistent abdominal symptoms, an unexplained fracture, new persistent bone pain, unusual bleeding, or unexplained weight loss.

Every sign above is quoted from the sofidex article on Indolent systemic mastocytosis. If you are not sure, err upward — it is always reasonable to be checked.