Go through these in order and stop at the first one that applies. If you are reading this for someone else, answer for them.
1
Is any of this happening now?
Call 911
Call emergency services if a baby:
Is struggling to breathe or has long pauses in breathing
Develops blue, grey, or unusually pale lips or skin
Chokes and does not quickly recover
Has a prolonged seizure or repeated seizures without recovering
Becomes unresponsive or is very difficult to wake
Has bleeding that does not stop
Other emergency signs, for anyone
Someone who is struggling to breathe, gasping, choking, or cannot get words out
Someone who has chest pain, tightness or pressure lasting more than a few minutes
Someone who has sudden weakness or drooping on one side of the face or body, slurred speech, or sudden confusion
Someone who is unconscious, or cannot be woken
Someone who is bleeding heavily and it will not stop with firm pressure
Someone who has had a seizure that will not stop, or does not wake up afterwards
Someone who has lips or skin that look pale, blue, grey or blotchy
Someone who you believe has taken an overdose or swallowed something poisonous
2
Is any of this happening?
Be seen today
Contact the baby’s clinical team promptly for a new fever with cough, increasing choking, reduced feeding, fewer wet diapers, unusual sleepiness, new seizures, or a clear change in breathing.
3
Does any of this apply?
Book an appointment
Routine appointments remain important even when symptoms seem unchanged.
They allow the team to review nutrition, swallowing safety, breathing, comfort, blood counts, development, and the family’s care priorities.
Every sign above is quoted from the sofidex article on Infantile gaucher disease. If you are not sure, err upward — it is always reasonable to be checked.