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Warning-sign checks

Klippel-trenaunay syndrome: when to get help

Go through these in order and stop at the first one that applies. If you are reading this for someone else, answer for them.

  1. 1

    Is any of this happening now?

    Call 911

    Seek emergency help for symptoms that could indicate a pulmonary embolism or severe bleeding:

    • Sudden shortness of breath
    • Chest pain, especially if worse when breathing in
    • Coughing up blood
    • Fainting or severe weakness
    • Heavy bleeding that does not stop with firm pressure
    Other emergency signs, for anyone
    • Someone who is struggling to breathe, gasping, choking, or cannot get words out
    • Someone who has chest pain, tightness or pressure lasting more than a few minutes
    • Someone who has sudden weakness or drooping on one side of the face or body, slurred speech, or sudden confusion
    • Someone who is unconscious, or cannot be woken
    • Someone who is bleeding heavily and it will not stop with firm pressure
    • Someone who has had a seizure that will not stop, or does not wake up afterwards
    • Someone who has lips or skin that look pale, blue, grey or blotchy
    • Someone who you believe has taken an overdose or swallowed something poisonous
  2. 2

    Is any of this happening?

    Be seen today

    Get urgent medical assessment for new one-sided swelling, warmth, redness, or pain, especially if it begins suddenly.

    These symptoms can occur with a DVT.

    Fever with rapidly spreading redness, increasing pain, or feeling very unwell may indicate cellulitis and also needs prompt care.

  3. 3

    Does any of this apply?

    Book an appointment

    Routine appointments are appropriate for reviewing compression garments, monitoring growth, discussing a stable birthmark, or managing ongoing swelling that has not suddenly changed.

The article also says

Contact your usual care team soon for repeated bleeding, blood in urine or stool, a new wound, persistent fluid leakage, increasing pain, or a noticeable change in limb size or function.

Every sign above is quoted from the sofidex article on Klippel-trenaunay syndrome. If you are not sure, err upward — it is always reasonable to be checked.