Lambert-eaton myasthenic syndrome: when to get help
Go through these in order and stop at the first one that applies. If you are reading this for someone else, answer for them.
1
Is any of this happening now?
Call 911
Seek emergency help for severe or rapidly worsening breathlessness, inability to swallow saliva, repeated choking, a very weak cough, or bluish or grey lips or skin.
These can indicate serious breathing or swallowing weakness.
Other emergency signs, for anyone
Someone who is struggling to breathe, gasping, choking, or cannot get words out
Someone who has chest pain, tightness or pressure lasting more than a few minutes
Someone who has sudden weakness or drooping on one side of the face or body, slurred speech, or sudden confusion
Someone who is unconscious, or cannot be woken
Someone who is bleeding heavily and it will not stop with firm pressure
Someone who has had a seizure that will not stop, or does not wake up afterwards
Someone who has lips or skin that look pale, blue, grey or blotchy
Someone who you believe has taken an overdose or swallowed something poisonous
2
Is any of this happening?
Be seen today
If you already have LEMS, contact your care team promptly for:
A clear or lasting decline in strength
New choking, coughing during meals, or changes in speech
Repeated falls
New cough, unexplained weight loss, or ongoing chest symptoms
Possible treatment side effects or signs of infection
3
Does any of this apply?
Book an appointment
Arrange a medical appointment if you develop gradually worsening leg weakness, repeated difficulty rising from a chair, unexplained dry mouth with weakness, or new problems with balance.
These symptoms have many possible causes and need assessment rather than self-diagnosis.
Routine changes in stamina or mild symptom fluctuations can usually be discussed at scheduled follow-up, unless they are worsening quickly or affecting breathing or swallowing.
Every sign above is quoted from the sofidex article on Lambert-eaton myasthenic syndrome. If you are not sure, err upward — it is always reasonable to be checked.