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Warning-sign checks

Lissencephaly: when to get help

Go through these in order and stop at the first one that applies. If you are reading this for someone else, answer for them.

  1. 1

    Is any of this happening now?

    Call 911

    Call emergency services if a seizure lasts five minutes or longer, unless the person’s emergency plan gives a different threshold.

    Emergency help is also needed for repeated seizures without recovery, serious breathing difficulty, blue or grey lips, severe choking, or unusual unresponsiveness after a seizure.

    Other emergency signs, for anyone
    • Someone who is struggling to breathe, gasping, choking, or cannot get words out
    • Someone who has chest pain, tightness or pressure lasting more than a few minutes
    • Someone who has sudden weakness or drooping on one side of the face or body, slurred speech, or sudden confusion
    • Someone who is unconscious, or cannot be woken
    • Someone who is bleeding heavily and it will not stop with firm pressure
    • Someone who has had a seizure that will not stop, or does not wake up afterwards
    • Someone who has lips or skin that look pale, blue, grey or blotchy
    • Someone who you believe has taken an overdose or swallowed something poisonous
  2. 2

    Is any of this happening?

    Be seen today

    Seek prompt medical advice for:

    • New repeated jerks, head drops, stiffening, or bending spells
    • More frequent seizures or a clear change in seizure pattern
    • Regular coughing, choking, or wet-sounding breathing during meals
    • Poor fluid intake, fewer wet diapers, or unexplained weight loss
    • Increasing stiffness, pain, hip asymmetry, or skin pressure areas
    • Fever or cough in someone at risk of aspiration
  3. 3

    Does any of this apply?

    Book an appointment

    Arrange routine follow-up if seizures, feeding, sleep, movement, constipation, equipment needs, or comfort have gradually changed.

    A review is also appropriate if a child has stopped making expected progress or appears to have lost a skill.

The article also says

If rescue seizure medicine has been prescribed, follow the person’s written seizure plan.

Do not place anything in their mouth or try to hold them down during a seizure.

Every sign above is quoted from the sofidex article on Lissencephaly. If you are not sure, err upward — it is always reasonable to be checked.