Go through these in order and stop at the first one that applies. If you are reading this for someone else, answer for them.
1
Is any of this happening now?
Call 911
These changes are not always emergencies, but they may need assessment and a care-plan update.
Call emergency services if the person:
Is struggling to breathe or has blue or grey lips
Is choking and cannot breathe or cough effectively
Has a seizure lasting five minutes or longer
Has repeated seizures without recovering between them
Is unusually difficult to wake
Suddenly becomes limp, unresponsive, or severely weak
Follow an existing seizure or emergency care plan if one has been provided.
Other emergency signs, for anyone
Someone who is struggling to breathe, gasping, choking, or cannot get words out
Someone who has chest pain, tightness or pressure lasting more than a few minutes
Someone who has sudden weakness or drooping on one side of the face or body, slurred speech, or sudden confusion
Someone who is unconscious, or cannot be woken
Someone who is bleeding heavily and it will not stop with firm pressure
Someone who has had a seizure that will not stop, or does not wake up afterwards
Someone who has lips or skin that look pale, blue, grey or blotchy
Someone who you believe has taken an overdose or swallowed something poisonous
2
Is any of this happening?
Be seen today
Arrange a routine or prompt review if you notice a new loss of skills, increased muscle stiffness, feeding difficulty, weight loss, repeated chest infections, worsening sleep, new pain, or changes in hearing or vision.
Seek urgent medical advice for persistent vomiting, signs of dehydration, a suspected chest infection, a new seizure, or a clear increase in choking or coughing during meals.
Its instructions may recommend acting sooner.
Every sign above is quoted from the sofidex article on Multiple sulfatase deficiency. If you are not sure, err upward — it is always reasonable to be checked.