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Warning-sign checks

Neurofibromatosis: when to get help

Go through these in order and stop at the first one that applies. If you are reading this for someone else, answer for them.

  1. 1

    Is any of this happening now?

    Call 911

    Use emergency services for sudden weakness on one side, sudden inability to walk, a seizure lasting several minutes or repeated seizures without recovery, loss of consciousness, or a sudden severe headache with neurological symptoms.

    They are used to check blood pressure, vision, hearing, development, and known tumors rather than to respond to an emergency.

    And for anyone, someone who:

    • has sudden weakness or drooping on one side of the face or body, slurred speech, or sudden confusion
    Other emergency signs, for anyone
    • Someone who is struggling to breathe, gasping, choking, or cannot get words out
    • Someone who has chest pain, tightness or pressure lasting more than a few minutes
    • Someone who is unconscious, or cannot be woken
    • Someone who is bleeding heavily and it will not stop with firm pressure
    • Someone who has had a seizure that will not stop, or does not wake up afterwards
    • Someone who has lips or skin that look pale, blue, grey or blotchy
    • Someone who you believe has taken an overdose or swallowed something poisonous
  2. 2

    Is any of this happening?

    Be seen today

    Arrange a prompt medical assessment if you notice:

    • A tumor that is rapidly enlarging, hardening, or becoming persistently painful
    • New or worsening weakness, numbness, balance problems, or facial movement changes
    • New hearing loss, ringing in one ear, or repeated dizziness
    • A change in vision, including reduced or double vision
    • Persistent headaches, repeated vomiting, or new seizures
    • New bladder or bowel control problems
    • A child losing skills or developing clear learning, growth, or movement concerns

    And for anyone, someone who:

    • has a new severe headache unlike any they have had before
  3. 3

    Does any of this apply?

    Book an appointment

    Routine appointments remain important even when you feel well.

Every sign above is quoted from the sofidex article on Neurofibromatosis. If you are not sure, err upward — it is always reasonable to be checked.