Go through these in order and stop at the first one that applies. If you are reading this for someone else, answer for them.
1
Is any of this happening now?
Call 911
Seek emergency help for a seizure, fainting with incomplete recovery, sudden severe weakness, new inability to walk, confusion, or a severe headache with repeated vomiting.
New loss of bladder or bowel control together with leg weakness or numbness may indicate spinal cord compression and also needs emergency assessment.
And for anyone, someone who:
has sudden weakness or drooping on one side of the face or body, slurred speech, or sudden confusion
Other emergency signs, for anyone
Someone who is struggling to breathe, gasping, choking, or cannot get words out
Someone who has chest pain, tightness or pressure lasting more than a few minutes
Someone who is unconscious, or cannot be woken
Someone who is bleeding heavily and it will not stop with firm pressure
Someone who has had a seizure that will not stop, or does not wake up afterwards
Someone who has lips or skin that look pale, blue, grey or blotchy
Someone who you believe has taken an overdose or swallowed something poisonous
2
Is any of this happening?
Be seen today
Contact your NF2 team or usual healthcare service promptly if you notice a new or persistent change such as:
Worsening hearing, tinnitus, or balance
New facial numbness or weakness
New pain, tingling, or limb weakness
A changing or painful lump
Persistent headaches or changes in vision
New trouble walking or repeated falls
Sudden hearing loss needs urgent same-day medical assessment.
Early treatment may help in some causes of sudden hearing loss, whether or not it is related to NF2.
After surgery, urgent advice is needed for fever, increasing wound redness or drainage, worsening headache, or a clear watery leak from the nose, ear, or wound.
And for anyone, someone who:
has a new severe headache unlike any they have had before
Every sign above is quoted from the sofidex article on Neurofibromatosis 2. If you are not sure, err upward — it is always reasonable to be checked.