Go through these in order and stop at the first one that applies. If you are reading this for someone else, answer for them.
1
Is any of this happening now?
Call 911
Call emergency services for a seizure lasting five minutes or longer, repeated seizures without recovery, serious injury during a seizure, or trouble breathing afterward.
Follow an existing emergency seizure plan if one has been provided.
Sudden chest pain with shortness of breath is also an emergency because it may indicate a collapsed lung.
Severe abdominal or side pain with faintness may signal internal bleeding from a kidney lesion.
Other emergency signs, for anyone
Someone who is struggling to breathe, gasping, choking, or cannot get words out
Someone who has chest pain, tightness or pressure lasting more than a few minutes
Someone who has sudden weakness or drooping on one side of the face or body, slurred speech, or sudden confusion
Someone who is unconscious, or cannot be woken
Someone who is bleeding heavily and it will not stop with firm pressure
Someone who has had a seizure that will not stop, or does not wake up afterwards
Someone who has lips or skin that look pale, blue, grey or blotchy
Someone who you believe has taken an overdose or swallowed something poisonous
2
Is any of this happening?
Be seen today
Arrange routine or prompt medical follow-up if you notice new seizures, increasing seizure frequency, changes in learning or behavior, persistent headaches, blood in the urine, worsening skin lesions, or gradually increasing breathlessness.
Seek urgent medical advice for:
A first suspected seizure
Repeated infant head drops, body crunches, or sudden stiffening
Sudden severe pain in the side or abdomen
New weakness, fainting, or visible blood in the urine
Persistent vomiting with headache or unusual sleepiness
A clear decline in balance, vision, movement, or awareness
Every sign above is quoted from the sofidex article on Phakomatosis TS. If you are not sure, err upward — it is always reasonable to be checked.