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Warning-sign checks

Pierre robin sequence: when to get help

Go through these in order and stop at the first one that applies. If you are reading this for someone else, answer for them.

  1. 1

    Is any of this happening now?

    Call 911

    Call emergency services if a baby or child:

    • Turns blue, grey, or unusually pale around the lips or face
    • Stops breathing, has repeated breathing pauses, or cannot be woken normally
    • Has severe chest pulling, gasping, or obvious difficulty getting air
    • Becomes limp or suddenly much less responsive
    • Chokes and cannot breathe or make sounds
    Other emergency signs, for anyone
    • Someone who is struggling to breathe, gasping, choking, or cannot get words out
    • Someone who has chest pain, tightness or pressure lasting more than a few minutes
    • Someone who has sudden weakness or drooping on one side of the face or body, slurred speech, or sudden confusion
    • Someone who is unconscious, or cannot be woken
    • Someone who is bleeding heavily and it will not stop with firm pressure
    • Someone who has had a seizure that will not stop, or does not wake up afterwards
    • Someone who has lips or skin that look pale, blue, grey or blotchy
    • Someone who you believe has taken an overdose or swallowed something poisonous
  2. 2

    Is any of this happening?

    Be seen today

    Seek urgent medical assessment for worsening noisy breathing, new breathing pauses, repeated choking during feeds, or signs of dehydration.

    Signs of dehydration include fewer wet nappies, a very dry mouth, unusual sleepiness, or difficulty taking feeds.

    Contact the regular care team promptly if feeds are taking much longer, weight gain has slowed, an airway tube will not stay in place, or symptoms are changing.

  3. 3

    Does any of this apply?

    Book an appointment

    Fever, ear pain, ear discharge, or reduced response to sound also need routine medical review.

    Planned follow-up remains important even when breathing appears better.

    Airway obstruction can be most noticeable during sleep, and hearing loss from middle-ear fluid may have few obvious signs.

Every sign above is quoted from the sofidex article on Pierre robin sequence. If you are not sure, err upward — it is always reasonable to be checked.