sofidexFor patientsAre you a clinician? Clinical site

Warning-sign checks

Progressive supranuclear palsy: when to get help

Go through these in order and stop at the first one that applies. If you are reading this for someone else, answer for them.

  1. 1

    Is any of this happening now?

    Call 911

    Call emergency services for severe breathing difficulty, choking that does not clear, loss of consciousness, or a serious head injury.

    Sudden facial drooping, one-sided weakness, or an abrupt speech change may be signs of a stroke rather than ordinary PSP progression and also require emergency care.

    Other emergency signs, for anyone
    • Someone who is struggling to breathe, gasping, choking, or cannot get words out
    • Someone who has chest pain, tightness or pressure lasting more than a few minutes
    • Someone who has sudden weakness or drooping on one side of the face or body, slurred speech, or sudden confusion
    • Someone who is unconscious, or cannot be woken
    • Someone who is bleeding heavily and it will not stop with firm pressure
    • Someone who has had a seizure that will not stop, or does not wake up afterwards
    • Someone who has lips or skin that look pale, blue, grey or blotchy
    • Someone who you believe has taken an overdose or swallowed something poisonous
  2. 2

    Is any of this happening?

    Be seen today

    New coughing during meals, unexplained weight loss, or longer mealtimes should prompt a swallowing review.

    Seek urgent medical advice for:

    • Repeated choking or coughing when eating and drinking
    • Fever, new cough, chest pain, or unusual breathlessness
    • A sudden major decline in walking, alertness, or swallowing
    • Signs of dehydration, such as very little urine or increasing confusion
    • A fall followed by persistent pain or reduced ability to move
  3. 3

    Does any of this apply?

    Book an appointment

    Arrange routine follow-up if you notice new falls, worsening stiffness, changes in vision, increasing difficulty speaking, low mood, disturbed sleep, or greater difficulty with everyday tasks.

Every sign above is quoted from the sofidex article on Progressive supranuclear palsy. If you are not sure, err upward — it is always reasonable to be checked.