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Warning-sign checks

Skull base chordoma: when to get help

Go through these in order and stop at the first one that applies. If you are reading this for someone else, answer for them.

  1. 1

    Is any of this happening now?

    Call 911

    Seek urgent or emergency help for:

    • Sudden loss of vision
    • New weakness or numbness affecting one side of the body
    • A first seizure or a seizure lasting longer than usual
    • Severe headache with repeated vomiting, confusion or unusual drowsiness
    • Sudden difficulty speaking, breathing or swallowing saliva
    • Fever, neck stiffness or marked illness after skull base surgery
    • Clear fluid from the nose after surgery, especially with headache or fever
    Other emergency signs, for anyone
    • Someone who is struggling to breathe, gasping, choking, or cannot get words out
    • Someone who has chest pain, tightness or pressure lasting more than a few minutes
    • Someone who has sudden weakness or drooping on one side of the face or body, slurred speech, or sudden confusion
    • Someone who is unconscious, or cannot be woken
    • Someone who is bleeding heavily and it will not stop with firm pressure
    • Someone who has had a seizure that will not stop, or does not wake up afterwards
    • Someone who has lips or skin that look pale, blue, grey or blotchy
    • Someone who you believe has taken an overdose or swallowed something poisonous
  2. 2

    Is any of this happening?

    Be seen today

    If you have been treated for chordoma, contact your specialist team promptly about new symptoms, a steady worsening of existing symptoms, clear watery drainage from the nose, or possible treatment side effects.

    Do not wait for the next routine scan.

  3. 3

    Does any of this apply?

    Book an appointment

    Arrange a routine medical assessment if you develop persistent headaches, double vision, facial numbness, swallowing difficulty or other unexplained neurological symptoms.

    These symptoms are usually caused by something other than chordoma, but ongoing or worsening changes should be checked.

Every sign above is quoted from the sofidex article on Skull base chordoma. If you are not sure, err upward — it is always reasonable to be checked.