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Warning-sign checks

Spinocerebellar ataxia: when to get help

Go through these in order and stop at the first one that applies. If you are reading this for someone else, answer for them.

  1. 1

    Is any of this happening now?

    Call 911

    Seek emergency help for symptoms that begin suddenly, especially facial drooping, one-sided weakness or numbness, new severe trouble speaking, sudden loss of coordination, or a severe unusual headache.

    Emergency help is also needed for severe choking, inability to breathe, loss of consciousness, or a serious injury after a fall.

    Other emergency signs, for anyone
    • Someone who is struggling to breathe, gasping, choking, or cannot get words out
    • Someone who has chest pain, tightness or pressure lasting more than a few minutes
    • Someone who has sudden weakness or drooping on one side of the face or body, slurred speech, or sudden confusion
    • Someone who is unconscious, or cannot be woken
    • Someone who is bleeding heavily and it will not stop with firm pressure
    • Someone who has had a seizure that will not stop, or does not wake up afterwards
    • Someone who has lips or skin that look pale, blue, grey or blotchy
    • Someone who you believe has taken an overdose or swallowed something poisonous
  2. 2

    Is any of this happening?

    Be seen today

    Contact your healthcare team promptly if you have:

    • Increasing falls or a new difficulty walking safely
    • Coughing, choking, or a wet voice during meals
    • Unplanned weight loss or difficulty drinking enough
    • New vision loss, severe muscle spasms, or major sleep problems
    • Persistent low mood, anxiety, or difficulty coping

    These may be signs of a stroke or another urgent condition rather than the usual progression of SCA.

  3. 3

    Does any of this apply?

    Book an appointment

    Arrange a routine medical appointment if you develop gradually worsening balance, speech, coordination, vision, or swallowing problems.

    Assessment is also appropriate if you have a family history of SCA and want information about symptoms or genetic testing.

Every sign above is quoted from the sofidex article on Spinocerebellar ataxia. If you are not sure, err upward — it is always reasonable to be checked.