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Warning-sign checks

Tardive dyskinesia: when to get help

Go through these in order and stop at the first one that applies. If you are reading this for someone else, answer for them.

  1. 1

    Is any of this happening now?

    Call 911

    Seek emergency help if you:

    • Cannot breathe or are choking and cannot clear the blockage
    • Cannot swallow saliva or develop severe, sudden swallowing difficulty
    • Develop fever, severe muscle stiffness, confusion, and reduced alertness while taking an antipsychotic

    Fever with severe stiffness and confusion may indicate neuroleptic malignant syndrome, a rare emergency that is different from tardive dyskinesia.

    And for anyone, someone who:

    • has lips or skin that look pale, blue, grey or blotchy
    Other emergency signs, for anyone
    • Someone who is struggling to breathe, gasping, choking, or cannot get words out
    • Someone who has chest pain, tightness or pressure lasting more than a few minutes
    • Someone who has sudden weakness or drooping on one side of the face or body, slurred speech, or sudden confusion
    • Someone who is unconscious, or cannot be woken
    • Someone who is bleeding heavily and it will not stop with firm pressure
    • Someone who has had a seizure that will not stop, or does not wake up afterwards
    • Someone who you believe has taken an overdose or swallowed something poisonous
  2. 2

    Is any of this happening?

    Be seen today

    Contact your care team promptly if you have repeated choking, increasing difficulty swallowing, frequent falls, or treatment side effects such as marked sleepiness, stiffness, or slowed movement.

    And for anyone, someone who:

    • has a wound that is hot, spreading red, or leaking pus
  3. 3

    Does any of this apply?

    Book an appointment

    Arrange a routine appointment if you notice new repeated movements after taking an antipsychotic, metoclopramide, or another dopamine-blocking medicine.

    This is also appropriate if known movements are becoming more frequent or affecting eating, speech, work, walking, or social activities.

    And for anyone, someone who:

    • has noticed a lump, a mole that has changed, or unexplained weight loss

Every sign above is quoted from the sofidex article on Tardive dyskinesia. If you are not sure, err upward — it is always reasonable to be checked.