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Warning-sign checks

Trisomy 18 syndrome: when to get help

Go through these in order and stop at the first one that applies. If you are reading this for someone else, answer for them.

  1. 1

    Is any of this happening now?

    Call 911

    Call emergency services for:

    • Severe trouble breathing, gasping, or long breathing pauses
    • Blue, grey, or unusually pale lips or skin
    • Unresponsiveness or difficulty waking
    • A first seizure, a seizure lasting more than five minutes, or repeated seizures without recovery
    • Sudden collapse or another change covered by the child's emergency plan

    If your child has an individualized emergency or comfort-care plan, keep it available and follow the instructions in that plan.

    Other emergency signs, for anyone
    • Someone who is struggling to breathe, gasping, choking, or cannot get words out
    • Someone who has chest pain, tightness or pressure lasting more than a few minutes
    • Someone who has sudden weakness or drooping on one side of the face or body, slurred speech, or sudden confusion
    • Someone who is unconscious, or cannot be woken
    • Someone who is bleeding heavily and it will not stop with firm pressure
    • Someone who has had a seizure that will not stop, or does not wake up afterwards
    • Someone who has lips or skin that look pale, blue, grey or blotchy
    • Someone who you believe has taken an overdose or swallowed something poisonous
  2. 2

    Is any of this happening?

    Be seen today

    Seek prompt medical advice if your child has more coughing or choking during feeds, fewer wet diapers, repeated vomiting, a fever, increasing sleepiness, new swelling, or a noticeable change in breathing.

  3. 3

    Does any of this apply?

    Book an appointment

    Arrange routine follow-up if feeding is becoming harder, weight gain slows, constipation or reflux persists, or equipment no longer fits.

    New changes in movement, hearing, vision, sleep, or alertness also deserve assessment.

Every sign above is quoted from the sofidex article on Trisomy 18 syndrome. If you are not sure, err upward — it is always reasonable to be checked.