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Warning-sign checks

Von willebrand disease: when to get help

Go through these in order and stop at the first one that applies. If you are reading this for someone else, answer for them.

  1. 1

    Is any of this happening now?

    Call 911

    Seek emergency care for:

    • Bleeding that is heavy, rapidly worsening, or will not stop with firm pressure
    • A significant head injury, especially with headache, vomiting, confusion, weakness, or unusual sleepiness
    • Vomiting blood, coughing up blood, or passing black or bloody stools
    • Sudden severe pain or swelling that could represent internal, muscle, or joint bleeding
    • Heavy vaginal bleeding with fainting, marked weakness, chest pain, or breathing difficulty
    • Heavy bleeding during pregnancy or after childbirth
    • Swelling or bleeding in the mouth or neck that affects breathing or swallowing

    Use the emergency treatment plan provided by your specialist if you have one.

    Other emergency signs, for anyone
    • Someone who is struggling to breathe, gasping, choking, or cannot get words out
    • Someone who has chest pain, tightness or pressure lasting more than a few minutes
    • Someone who has sudden weakness or drooping on one side of the face or body, slurred speech, or sudden confusion
    • Someone who is unconscious, or cannot be woken
    • Someone who is bleeding heavily and it will not stop with firm pressure
    • Someone who has had a seizure that will not stop, or does not wake up afterwards
    • Someone who has lips or skin that look pale, blue, grey or blotchy
    • Someone who you believe has taken an overdose or swallowed something poisonous
  2. 2

    Is any of this happening?

    Be seen today

    Contact your healthcare team promptly for bleeding that keeps returning, a period that becomes much heavier, bleeding after a procedure, or symptoms of anaemia.

    Medical assessment may be needed even if the bleeding has stopped.

  3. 3

    Does any of this apply?

    Book an appointment

    Routine contact is appropriate before planned surgery, dental extraction, pregnancy, or starting a medicine that affects clotting.

    Regular follow-up is also useful if your bleeding pattern changes.

Every sign above is quoted from the sofidex article on Von willebrand disease. If you are not sure, err upward — it is always reasonable to be checked.